A Father’s Journey with His Wordless Daughter
Schuyler is a princess whose story is unlike most, and unlike most fairy tales, the monster in her story is one she cannot see or touch or even run away from. It is Bilateral Perisylvian Polymicrogyria (BPP), a rare neurological disorder that affects her speech, and after five years of doctors visits and one alarming parent-teacher conference at a school in Austin, Robert Rummel-Hudson and his wife Julie moved to Plano to try to slay the beast.
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Excerpt (not in story)
From the Prologue
The first time we met Schuyler’s monster, it lay waiting to pounce, not from behind a rock or from the mouth of a cave, but peeking out from between the lab coats of two nervous and sad-faced doctors.
When we stepped into Dr. Simon’s office, we only expected to see Schuyler’s pediatrician. Instead we found her waiting with Dr. Ment from the Yale University Medical School’s Department of Neurology. When we saw the sheet of MRI photos already in place on the light board, our world stopped. The doctors looked at us as if they wanted to be anywhere but in that office, and Julie and I looked back at them with the slow realization that we were about to get kicked in the teeth. We all stood there for a moment, none of us sure what to do.
No one except Schuyler, of course.
She’d been to doctors’ offices before. She was only three years old, looking for all the world like a perfectly normal, pretty little girl. Friends and strangers alike often pointed out that she was a dead ringer for a young Drew Barrymore. Schuyler wasn’t like most little girls, however. She couldn’t articulate a single word.
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